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Our research endeavors focus on examining the ethical and social implications of medical research, with a specific emphasis on rare diseases. Employing both, quantitative and qualitative research methods, we aim to gain broad insights into the challenges encountered by persons affected by rare diseases. Through this multifaceted approach, we strive to develop a nuanced understanding of their experiences and challenges.
Financed by: URPP ITINERARE; University of Zurich
Duration: 1.1.2020 – 31.12.2028